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Meningioma- our story

Jenny and I have decided to use the 'internets' to share and provide timely updates about the history, diagnosis, treatment, and our personal observations about this condition. We want to use this forum to keep friends and family updated as Jenny prepares for surgery (Feb. 12, 2009) and also provide support and knowledge to others who are facing a meningioma (brain tumor).

Monday, April 27, 2009

More Seizures??

Since my 2nd surgery, I've had some interesting symptoms pop up:

  • Terrifying dreams in which I cannot breathe - like I'm having a nasty, nasty asthma attack.  I don't wake up during these dreams (I wish that I would), but all I know is that they are TERRIFYING.  I thought it was either my allergies acting up or anxiety from the last couple of months (both are very plausable explanations!)
  • My tremor in my left hand has returned noticeably.
  • My right eye has been twitching on and off most days.
  • I smell a popcorn smell on and off all day even when there is no popcorn around anywhere.
I told Dr. Shaprio about the tremor and twitching and really didn't get a response.  I just thought that it's part of the healing process.  Which, to Dr. Shapiro's defense, is probably pretty normal healing stuff.

But taken together with the other symptoms, I really think that I'm having partial seizures, based on some research that I've done. I've got a call into the neurologist, Dr. Snook, to see what's going on and to see if we can resolve these issues.

YET ANOTHER REASON WHY PATIENTS MUST MANAGE THEIR CARE.  When you know something isn't right, don't give up.  And I want to get this figured out before the proton therapy starts.


Posted by Kevin and Jenny at 1:27 PM
Labels: meningioma, post-surgery meningioma, seizures

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Blog Archive

  • ▼  2009 (110)
    • ►  January (4)
    • ►  February (35)
    • ►  March (15)
    • ▼  April (25)
      • A bump in the road
      • Funny Story
      • Hello members of the jenny fan club
      • Out of surgery..
      • Surgery went well
      • Old stomping grounds
      • Very groggy but okay...
      • Who knew?
      • Ultimate bed-head
      • 13 round box match
      • For better or worse, in sickness and in health.....
      • Hospitals can suck it....
      • Back Home Again!
      • Frustration
      • Public Service Announcement
      • Quick update
      • Proton Therapy Schedule
      • Infection?
      • Still Waiting
      • Progress!
      • More poking, prodding and radiation!
      • Tiredness Part III
      • More Seizures??
      • AAK (All About Kevin) Post
      • Seizures again
    • ►  May (8)
    • ►  June (7)
    • ►  July (6)
    • ►  August (5)
    • ►  September (2)
    • ►  October (1)
    • ►  November (2)
  • ►  2010 (1)
    • ►  February (1)

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